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Re: Tinnitus

Postby Andy McBain » Mon Aug 08, 2016 1:54 pm

ManFromGlass wrote:Yes please let us know about the Bedphones. How they work and if they are comfortable.

I will be picking up a pair when I'm visiting family in the states in a month's time - so i'll report back :)

Looking at reviews of the original models have suggested they were a bit flimsy and didn't fit very well round the ears... hopefully at revision 3, they've now addressed these issues!
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Re: Tinnitus

Postby Andy McBain » Mon Aug 08, 2016 2:09 pm

Sorry to dig up this thread guys - but I now have funds available for custom moulds and just wanted to get some last minute validation due to the price.

The ACS PRO17 seem to be popular with folk on here - and the idea of a "flat response" plug (or as close as you can get to flat) is definitely appealing to me. I'm a live performer, DJ and fairly regular concert & club goer - so being able to still enjoy the music while protecting my ears is paramount. I have mild high frequency tinnitus in my left ear and at age 29 I'd rather not make it any worse. Is the PRO17 going to offer sufficient protection or should I be going higher?

Cheers!

Andy
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Re: Tinnitus

Postby mick.n » Thu Dec 01, 2016 1:47 pm

Just to update.................. I bought the Alpine pro plugs yesterday. The one's with 3 different filters. They are REALLY short compared to my ER20 plugs. The insertion tool is ok for putting them in, but useless for getting them out..............got one stuck in my right ear & took almost half hour to remove.

Back to the drawing board. ;)

Andy...........just noticed your post. Had a look on the ACS Pro 17 website, around £138 for the impressions & plugs all in. These seem like a better option. If i gigged more frequently i would go for these.
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Re: Tinnitus

Postby Andy McBain » Thu Dec 01, 2016 2:22 pm

mick.n wrote:Just to update.................. I bought the Alpine pro plugs yesterday. The one's with 3 different filters. They are REALLY short compared to my ER20 plugs. The insertion tool is ok for putting them in, but useless for getting them out..............got one stuck in my right ear & took almost half hour to remove.

Back to the drawing board. ;)

Andy...........just noticed your post. Had a look on the ACS Pro 17 website, around £138 for the impressions & plugs all in. These seem like a better option. If i gigged more frequently i would go for these.

Thanks Mick - I did actually go for them in the end :) The process of getting them made up was very simple and quick - they were delivered a week after the impressions were taken. They certainly have the flattest response of any earplug I've used and they don't spoil the gig experience in any way. Result! Though they can make my ears itch the day after so I'm glad I'm not wearing them every day.

I also acquired a pair of Bedphones - which I've been using at night to listen to podcasts etc. and distract me from the ringing. They're a little tinny but do the job - and once you've got them fitted around your ear correctly you barely notice that you're wearing them.
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Re: Tinnitus

Postby One Horse Town » Thu Dec 01, 2016 2:58 pm

An NHS audilogist (yes they still exist) some years ago supplied me with a device which looked like a normal hearing aid but which produced white noise with a frequency matched to my hearing. After a month the tinnitus had diminished by at least 50%. As with most sufferers the problem manifests in quiet periods such as during the night in bed. This dealt with it - it distracts the brain from the unwanted frequencies apparently. Unfortunately it doesn't distract my wife from my snoring!
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Re: Tinnitus

Postby Zukan » Thu Aug 13, 2020 11:18 am

I am a member of Tinnitus.org and although they provide very good resource content I am still struggling with finding help for my tinnitus. In the past 7 years I have developed additional sounds on top of the 24/7 sinewaves that have invaded my life, and to the point of insanity.

Has anyone got any info of current developments for this condition? I am aware that some overseas research is yielding decent data for us to chew on but short of a white paper I cannot access any information on the internet.

My tinnitus has leapt in volume and is so invasive that it has cripped my ability to mix/produce. I am now rejecting mix contracts simply because I cannot trust my hearing anymore. This is the first time this has happened in my 40 years in this industry. My last 3 contracts have all been binned as I am in agony trying to audition any music for any length of time. This results in me making poor mixing decisions and I can honestly say that my hearing changes from day to day. If I mix a track today I can guarantee that it will 'sound' different the next day to my ears.

I am unable to sleep as the tinnitus reigns supreme 24/7 and is so loud that I actually vomit from the pain.

I have been going to the audiology unit here at both Wycombe and Stoke Mandeville hospitals for the past 6 years and almost every 6 months. Although the doctors and nurses are very supportive they say there is little they can do for my condition. I have been redirected to my GP to help with the nausea caused by the tinnitus but this is all 'band aid' solutions and not helpful for the bigger issue at hand.

I was recently invited by the Recording Academy to become a Grammy judge. An accolade which I have wholeheartedly accepted. However, and the point I am trying to address, is how on earth can I judge an entry if my hearing is so compromised? I have emailed the Academy this morning to discuss setting up a section on their site for sufferers like me. I hope they embrace and explore this suggestion as I know there are many sufferers struggling with this horrendous condition. I am hoping their standing will generate both interest and, hopefully, more readily available information on the research being conducted.

I am not posting here for sympathy. I get enough of that from my family and friends. No, I am posting this because I know there are other sufferers like me that are finding it very hard to cope.

I want to keep this thread going so that we can keep updating it with any morsel of legitimate information that becomes available. Additionally, any amount of tips, methodologies, and general spiritual advice etc...are truly welcome.
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Re: Tinnitus

Postby RichardT » Thu Aug 13, 2020 11:34 am

Hi Zukan,

What a nightmare! I’m really sorry you’re suffering in this way.

I saw this - research on a drug for treating tinnitus.

https://businessjournaldaily.com/neomed-professor-awarded-2-18m-grant-to-develop-tinnitus-cure/
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Re: Tinnitus

Postby DC-Choppah » Sat Aug 15, 2020 3:24 am

There are many many medical conditions that cause tinnitus. Although you guys assume it is music related, please talk to your doc. It may be something else.
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Re: Tinnitus

Postby Tim Gillett » Sat Aug 15, 2020 5:44 am

That's terrible Zukan. I second DC. Dont think of it just in terms of tinnitus, bad as it obviously is. The tinnitus may just be the outward symptom. It's important to rule out possible physical issues. I'd talk to my GP who would normally refer you for the appropriate specialist advice and tests.
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Re: Tinnitus

Postby HomerJSimpsson » Sat Aug 15, 2020 6:06 am

TINITUS SUCKS !

I had Tinitus for years now, it's pritty load but mostly I somehow ignore it. Lately, starting maby a year ago, I even hear birdnoises, tweets or what that is called. First I thougt there's some stupid bird close around. Than I realised with fingeris in my ears, the bird was in my head ... am I going crazy ? Or is that just som more Tinitus ...

I learnd, when you tensed, specially in your neck, the stiff muscules put pressure on nervs, cousing some tinitus. So by relaxing the neck musculars you may can ease up that particular part of tinitus, but it won't effect the one caused by damage.

Best to my knoledge there can't be a drug for tinitus, because that would be like growing back a lost limb ... maybe genetics could help rebuilding but in distance future.
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Re: Tinnitus

Postby ManFromGlass » Sat Aug 15, 2020 5:18 pm

I say damn because I lost an article that popped up on the internet regarding the treatment of tinnitus with magnets around the head. I found it interesting because there appeared to be real science behind the research, not some quackery. I’ll keep looking. Mine has flared up too but it’s bearable hi freq sine wave like.
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Re: Tinnitus

Postby DanDan » Sat Aug 15, 2020 10:47 pm

Quite some years ago, a secondary student won Young Scientist of the Year with a Tinnitus system. All grown up now. https://www.lenire.com/what-is-lenire?g ... gLL5_D_BwE
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Re: Tinnitus

Postby shufflebeat » Sun Aug 16, 2020 4:13 am

DanDan wrote:Quite some years ago, a secondary student won Young Scientist of the Year with a Tinnitus system. All grown up now. https://www.lenire.com/what-is-lenire?g ... gLL5_D_BwE

Sounds interesting, I shall go and suck on a PP3 straight away.
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Do yourself a favour, wear earplugs at gigs.

Re: Tinnitus

Postby adrian_k » Sun Aug 16, 2020 4:23 pm

It’s a terrible, maddening thing, I have total sympathy with anyone who experiences this.

I had a really bad bout of it about 8 or 9 years ago. It’s slowly got better over the years. I don’t know if it’s change of lifestyle (gave up stressful job, stopped drinking, became vegetarian, avoid dairy if possible) or just age.

I have it again at the moment though, high pitched ringing mostly in the left but right now in both. I’ve been doing a lot with headphones recently, don’t know if that’s connected.
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Re: Tinnitus

Postby Sam Spoons » Sun Aug 16, 2020 4:30 pm

adrian_k wrote:I have it again at the moment though, high pitched ringing mostly in the left but right now in both. I’ve been doing a lot with headphones recently, don’t know if that’s connected.

I'd say it's very likely, it's very easy to listen at elevated levels with headphones on and not notice. Age is a factor I think and mine got a lot worse when I was doing regular PA gigs but, even now it is nothing like as bad as Zukan and some other are experiencing.
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